My MS Bully and Me

                                                         Copyright: C King It's been over a year since my last post and, if you're missing this blog, you're probably wondering where I have been. To say that I have been been resting on my laurels would be an overstatement, given that I'm not very good at pacing. After months of home-schooling finally ended, I threw myself into supporting others, including advocating for them.  I have been particularly busy in my advocacy work - guest blogging, filming, reporting, mentoring, public speaking. This year, I've also been a member of the All Party Parliamentary Group (APPG) for MS, which has been extremely interesting, and supporting others in navigating a health system which, whilst amazing, can be sometimes monolithic and uncommunicative at a time when some are going through the most difficult ...

I get asked this a lot by people who don't have MS and, of course, I'm not expecting them to magically gain an exact insight, but I hope that in my explanations I can at least get them to better understand. Fatigue is a big one but because of this I feel it deserves its own post so I'll leave this one to another time. Cognitive Fog 'Cog fog', as it's known within the community, often acts in conjunction with fatigue. It's a disconnection from the world, a lack of alertness that brings on other symptoms such as issues with word-finding and concentration, and sometimes slurring of words. I sometimes feel like my brain is following but my mouth or hands are catching up. It's one of my most frustrating of symptoms as I know how articulate I can be and I often worry about how others, who may not know I have MS or if they do, may not understand it, perceive me. It's like being drunk without all of the benefits. It's yet another devious remin...