Where have I been?

-
Gosh, it's September and I haven't written a blog for a while. This is probably not a bad thing as it means I've been busy, though not so busy that it's been counter-productive.
I've been working on a couple of guest blogs. The below was for the MS Society, and really came from a reflective place, thinking about what I wish I had known when I was newly-diagnosed with MS.

https://www.mssociety.org.uk/care-and-support/online-community/community-blog/5-tips-for-newly-diagnosed-msers

I have also written a guest blog for the next issue of New Pathways magazine for MS UK, which will be released on 1st October. In it, I talk about the small changes I made whilst on holiday to ensure that I paced myself but still had an excellent one.

In the middle of writing the guest blogs, I went on holiday with my family for the first time in three years, and it was delightful! In fact, the MS Society picture shows me on the cliffs of a bay in Dorset.

I've been working on a few blog posts but, as always, I tend to shelve them away for future use. I promise to write another soon.

In the meantime, keep well folks and keep pacing yourselves!

Carla

Popular posts from this blog

Blogs, Vlogs & Lots of Dialogue: Where Have I Been?

-
Image
                                                         Copyright: C King It's been over a year since my last post and, if you're missing this blog, you're probably wondering where I have been. To say that I have been been resting on my laurels would be an overstatement, given that I'm not very good at pacing. After months of home-schooling finally ended, I threw myself into supporting others, including advocating for them.  I have been particularly busy in my advocacy work - guest blogging, filming, reporting, mentoring, public speaking. This year, I've also been a member of the All Party Parliamentary Group (APPG) for MS, which has been extremely interesting, and supporting others in navigating a health system which, whilst amazing, can be sometimes monolithic and uncommunicative at a time when some are going through the most difficult time of their lives. I returned to work thus fulfilling, and resurrecting, a slightly delayed career goal.  My MS has thrust itse
Read more

Ghosting Someone with a Chronic Illness

-
Image
Copyright: C King I t's been very helpful to put pen to paper on a topic I strongly suspect others may relate to.  Ghosting: You may not be familiar with the term, but you're sure to have been ghosted in the past. It happens to many people. Firstly, if you have never heard of it, it's a verb. What is ghosting ? Lexico defines it as "The practice of ending a personal relationship with someone by suddenly and without explanation withdrawing from all communication." I wish it also added something like "you're an idiot; you don't deserve my friendship" but apparently that's not allowed, or something! (pah!) Note this says 'personal' relationship, as anyone you know can ghost you - your friend, someone you're dating, a colleague or family member. To clarify, we all lose touch with people over the course of our lives, but that isn't ghosting . The difference here is that ghosting is intentional. It's a sudden, cons
Read more

A Chronically Ill Christmas

-
Image
Oh God, I've forgotten to buy the brussel sprouts and the world is about to end! Alright, which one of you moved the French baguette? What do you mean, you’ve eaten it?! That was for the Christmas MEAL! Okay, okay - I think I still have the bread machine somewhere. Flour, check, salt, check, yeast… where did I put the..? I. Don’t. Have. YEAST! (As you hyperventilate, you momentarily consider packing a bag and buying a last-minute one-way ticket to Spain. No one will notice.) In principle, those with chronic conditions love Christmas as much as anyone else, but the reality is that it can be anxiety-inducing and energy-draining. This isn’t just about the panic that descends upon our houses over a twenty-four hour period. It’s also about the fatigue brought about through entertaining others, the overwhelming – and growing - number of tasks leading up to and on the day, the need to create the perfection that is kids’ Christmas, and the aftermath in the subsequent few days that kno
Read more