Posts

What People are Learning from COVID19

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What can we learn from the Virus situation? Apart from the obvious, I really think there are lessons for humanity here and, given that we are likely to suffer some kind of global crisis again, I think these are worth noting.

Good Things to Come from the Situation

1. People are reaching out, reconnecting and supporting each other. I genuinely have been moved by the kindness of neighbours. Within a week of the first government press conference on the Virus, several threads appeared on a local neighbourhood app offering to help those locked away, with shopping drop offs, telephone chats, even the latest tips on where to buy that elusive toilet roll (I kid you not!).

2. Yes, organisations seem to have forgotten their disaster recovery plans, made after relatively recent terrorist attacks, only to be seized and enacted by new handlers. Yet businesses are finding creative ways to keep people working and connected, whilst still promoting remote working. Agile working has been a slow burner for…

5 Tips for Friends of Chronically Ill Folk

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There are a lot of conflicting things about chronic illness that those without it find confusing. I write this blogpost having just posted a celebratory post on Facebook, including pictures full of joy and my looking, frankly, extremely well! 

But it struck me that despite these photos having been taken on the previous day, there might be those on my feed that might wonder how I might seem fine one minute and not the next and, indeed, why I posted these pictures at all. How might someone understand without having it spelt out? Is this the barrier to their understanding?  So I thought I would produce a sort of 'chronically ill friend etiquette guide' to perhaps dispel some myths and help non-chronically ill friends better understand.

1. Chronic conditions fluctuate

Not long ago, I overheard a couple talk about someone they viewed as not being genuinely ill, in a way that I am sure they wouldn't dream of doing in person. Even recently, a family member questioned why I can go ou…

Part 2: My Goals for 2020

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Continuing from Part 1, I thought I would share this year's goals so that you can see how I have taken the steer given and applied it. However, I'm not going to spell these out in detail, as I'm sure you can read between the lines.

2019 was a transformative year, both in the way I experienced and approached aspects of life that could not be ignored. Time (sometimes brutally) highlighted what was missing, but I mostly realised that my 'voice' was not as much heard or as distinct, as I had hoped.

So I would be lying if I said these goals weren't already set. 

Goal 1: Return to work 

In 2019, I took a career break. Usually, people tend to plan a sabbatical during their careers to do something a bit different, take time out to discover what they want to do next, try things out. Mine was completely unplanned, but I took it to focus on my health and as a way to keep a job I love (creative problem-solver, anyone?). Obviously, I have a strong urge and hope that I will retu…

Part 1: Chronic Illness Goals: Why Resolutions Don't Work

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It's January, and I've given up on making resolutions. I used to believe in them. Indeed, I used to make and achieve them, but no longer, particularly due to the widely held belief that resolutions are only meant for January. 

I am a Coach and my currency is goal-setting. To me, a goal is more defined, definite and incentivising. I believe that with the right mindset, careful planning and with enough support, we in the health community can set and achieve our goals. 

I've split this topic into two blogposts, with the likelihood in mind that you may not have the remotest interest in the goals I have set myself. So, welcome to Part 1; this one's about you; espcially directed at those for whom their disability or health condition is a little more intrusive than for others.

On Twitter, I recently spoke about the New Year being an odd time. Not only is the end of a year a natural time to reflect - usually a really great thing to do - but it may also result in berating yourself…

Poem: Resolution

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Resolution is my new poem. The word means different things to different people: an outcome, a goal, determination. I would say all of these meanings have had relevance these last few months, and the important thing to take away is that I see light at the end of the tunnel; that what I am doing is taking effect. 

I am not always able to share what's going on or how I'm feeling, but I am a very positive person and I find my joy in so many things, including simple pleasures.

Just over a year ago, my last poem thanked those around me for their patience and support, and this hasn't changed. However, I have found myself increasingly grateful for the kindness they have shown me. 

I hope you enjoy the poem.

Resolution

There aren't the words, at times, to express all that I'm feeling,
There isn’t always strength to deal with what I'm dealing
I know I'm not alone in this; I know that I’m not crazy.
I know my efforts aren't in vain, and I know that I'm not lazy.

I&…

A New Perspective

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I've been thinking about my last post in the context of recent events. 


There is no question that when I wrote this, I felt frustration and disappointment. I thought that by talking about how I felt, it would be a way to turn it into something positive. Just as I suspected, I was approached by people for whom the blogpost resonated. I'm glad I spoke about it because it's not a topic people openly talk about very often. Plus, I'm an ENFJ, so...

Recently, I have realised just how fragile life can be. I know that sounds like an average platitude, but I never thought I would be presented with the opportunity to reiterate how true this cliché really is. 

We always think we have time.

I haven't spoken openly about this, so please bear with me. In September, my cousin was admitted into hospital with an infection. Her severe epilepsy brought with it complications, compromising her sight, hearing and communication. Whilst performing scans, doctors found a tumour, deep in an ar…